Weekly Checkup & Physio

Over the last few weeks the boys have had a great time playing together as Kaden’s strength, speed & balance improves 😃 

We have been attending the liver clinic & oncology weekly for Kaden’s check ups. Both teams are happy with Kaden’s numbers 😃

We are excited that Kaden will be starting school with Liam next week. The boys are both looking forward to going to school & seeing all their friends again 😃

   
Playing football

 
Water fun

  
Fun playing the Xbox 

Day 3 of tests 

We have finished day 3 of tests. Kaden wasn’t too happy today. The canula they left in his hand to draw blood out today, kept hitting a valve making it really tough to draw blood. The nurses had to wiggle the needle each time causing him pain, add the flush to this & he was at his wits end. This had to be done every hour for 4 hours! This is just one of the tests a child has to indure during & after treatment 😢 Kaden was happy to be leaving 😃

  
  

Day 3 of tests 

We have finished day 3 of tests. Kaden wasn’t too happy today. The canula they left in his hand to draw blood out today, kept hitting a valve making it really tough to draw blood. The nurses had to wiggle the needle each time causing him pain, add the flush to this & he was at his wits end. This had to be done every hour for 4 hours! This is just one of the tests a child has to indure during & after treatment 😢 Kaden was happy to be leaving 😃

  

Port Removal

Today marks a huge step in Kaden’s recovery. As I write this, Kaden is in surgery having his port removed (the thing that was needled when he was having chemo, IV antibiotics etc administered). Although this is a small operation compared to what he has been through, as a parent I feel anxious waiting for him to arrive in recovery. 

  

Week of tests 

This week we have a busy week of follow up tests for Kaden & lots of early mornings. 

The boys have had a great weekend. They have been busy playing in the pool & numerous Xbox games. Their favourite one is “just dance” which is great as it gets both of them up moving 😃

We have also encouraged the boys to get back on their bikes! They have both been a bit nervous about it even tho we explained the saying “just like riding a bike” 😃 With a bit more persistence tonight, the boys did great 😃 Over the last few nights we have seen the same family at our local park. Tonight they had the cricket stumps set up & it drew Kaden’s attention, so off he went and joined in. Think it might be time to invest in our own set 😃

  
  
   
 

Oncology visit & Exercise

We set off very early on Wednesday morning for Kaden’s MRI & oncology visit. Overall the meeting went well. He’s got lots of follow up tests to do next week CT, audiology etc. From these tests & discussion with the liver team, they will decide if they will put him on an oral drug for 6-12 months as an extra precaution.

Being such nice weather, we decided to venture out & get fish n chips on the beach. While waiting, the boys had a play at the park. Kaden is coming along in leaps & bounds, he climbed the rock wall, slide & was even balancing on the ropes. After a little while he spotted a boy & his mum playing cricket & said he wanted to play. They family was really lovely & let him join in. Before we knew it, other kids at the park also wanted to join in. It was so good to see Kaden enjoying being a normal kid 😃

   
    
 

Hospital checkups! 

Today we met with our new liver team here in WA. It felt weird to be establishing a new trust with a new team but it’s just part of our normal routine. Kaden will continue to have weekly blood tests for his liver numbers & immunosuppressant levels. 

On Wednesday we will be back in at PMH to meet with oncology & see what they have planned. 

We are all so excited with Kaden’s physical progress, from walking to jumping on the trampoline. Everyday he is getting stronger & more confident, on his feet. Tonight he excitedly showed me, that he could run a few steps, we are so proud of what our amazing son is achieving.