Time for an Update!

Thank you to everyone who has updated their profile pic on Facebook to display a gold ribbon or changed their profile pic to a superhero¬†for September being “Childhood Cancer Month” ! It’s getting people talking and awareness out there that will help put pressure on the government to make finding a cure for cancer a priority!

We have had a busy time lately as you may have guessed from the blog being so quiet. Kaden recently underwent three¬†surgeries. During this time, Kaden spent just on a week in the¬†PICU. As you can imagine it was an extremely stressful time for us, however¬†we can’t thank the amazing doctors and PICU nurses that were not only there to look after Kaden but¬†were also a massive support to Lee, Liam &¬†I. As¬†much as Lee and I tried to prepare ourselves¬†before we entered Kaden’s room, seeing our son heavily sedated and watching a machine breathe for him has to be one of the most terrifying things¬†a parent can¬†see. Kaden was surrounded by¬†13 machines that helped him breathe, tracked his heart rate, blood pressure, oxygen levels as well as administered pain and sedation meds.¬†During the first four days, Kaden was having a lot of spikes in his¬†heart rate and blood pressure. One of the doctors concerns was that¬† this may have been caused¬†by seizures and sent him down for a MRI scan. Knowing our son was¬†still so vulnerable and watching him being wheeled out of ICU and¬†down to the next level where the scan was, was extremely nerve wracking, especially when we had to stop suddenly to re-stabilize Kaden, before entering the lift.¬†We were so relived when the scan came back clear ūüôā While Kaden was sedated, we talked to him, reminding him of how much we loved him and of how proud we are of him, it was amazing to see his heart rate and blood pressure settle when he heard our voice and knew that we were there with him.

Kaden’s second surgery was 4 days later. The following day, the doctors decided it was time to start reducing the sedation meds and waking Kaden up. Lee and I¬†were excited that¬†Kaden was finally waking up, but there was one person who was even more excited and eager to see him awake, Kaden’s biggest fan, Liam.¬†Due to Kaden’s high tolerance to medications (morphine etc. needed to ease the pain of chemo), the doctors had to use quite high doses of numerous sedation meds. One of the major concerns with such high levels of sedation is the withdrawals patients go through.¬†Even tho the doctors were very slowly reducing the levels of the sedations meds, Kaden would still experience major withdrawals. Initially Kaden was still intubated until he was able to show the nurses and doctors that he was able to breathe on his own. During this time, lee and I became quite good at reading Kaden’s lips, it was so good to see him tell us he was hungry, thirsty and wanted to watch his Ipad ūüôā It was only a few hours later that the breathing tube was out and Kaden was able to tell us what he wanted.

It wasn’t long after that we realised that Kaden was starting to have significant withdrawals. He was hallucinating and kept asking the same questions over and over again. He wanted to sit up, lie down, move from his left to his right and back again, wanted his legs massaged then would ask you stop and¬†2 seconds later would ask you why you stoped,¬†this continued non stop for the next 24hrs until finally he was able to get some relief and fall asleep. As previously stated, seeing Kaden attached to so many machines was terrifying, watching Kaden go through withdrawals was a whole new type of terrifying. By the time Kaden finally fell asleep, Lee and I were exhausted and able to get a few hours sleep too. The following morning Kaden woke up as the boy that we know ūüôā Over the next week Kaden did still experience some withdrawals such as tremors and twitching but thankfully they stopped.

As the week progressed, we were happy to see the machines gradually¬†reduced as well as the removal of the many cannulas that had been placed in Kaden’s hands and feet and the central line that was in his neck. Before we knew it, the week was over and Kaden was able to be moved onto the ward. Kaden was on the ward just on¬†a week when he had to have his third surgery. The surgery took around an hour and Kaden recovered very well.

On the ward,¬†we still experienced some hairy moments, especially when Kaden’s heart rate dropped quite low. The doctors advised us that these drops in his heart rate were mainly due to the sedation meds that they were still weening him off. While these drops were happening, the nurses were performing daily ecg’s on Kaden’s heart as a precaution.¬†¬†As time went on, Kaden’s heart rate improved and he was able to be removed from the 24hr monitoring. Kaden is still on quite a few meds, some of them he has to take by mouth which he’s not too impressed about but is learning to accept it.

Since being on the ward Kaden has come along in leaps and bounds. He has enjoyed watching movies, playing board games¬†and¬†playing the xbox with Liam and dad.¬†The physio and occupational therapists have been great, encouraging Kaden to get up and moving as well as playing some fun games. This week Kaden and Liam even got to make slime and also did a science experiment with bi-carb, vinegar and food dye. As a special bit of encouragement for Kaden, the hospital¬†have even lent Kaden a bike to help strengthen his legs. Every day we take Kaden out of the ward and into the hospital corridors¬†for a ride. This has brought all of us a lot of happiness and laughs along the way, especially when we see our boys playing and racing down the corridors ūüôā

Kaden has also started to develop an appetite again¬†and is¬†trying lots of different foods. ūüôā

A special thanks go’s out to¬†our family for their ongoing support and for¬†flying over to Sydney¬†to help us while we have been on this journey, and to our gorgeous friends¬†for your daily messages of love and support, you have all been truly amazing and we can’t thank you enough.

We would also like thank everyone for the gifts that have been sent over to Sydney and Perth including the amazing Hawks blanket made by Tracey that took so many hours to create, Kaden has had it on his bed non stop.

Oh and one last thing … “GO Hawks” ūüôā

Watching movies together
Watching movies together
Playing with slime
Playing with slime
Gorgeous smile!
Gorgeous smile!
Enjoying vegemite on toast
Enjoying vegemite on toast
Special treat
Special treat
Creating 'slime'
Creating ‘slime’
Riding the bike
Riding the bike
One of Liam's favourite places
One of Liam’s favourite places
Enjoying dads dinner
Enjoying dads dinner
Supporting the Hawks with a blanket made especially for Kaden
Supporting the Hawks with a blanket made especially for Kaden

0 thoughts on “Time for an Update!”

  1. Thanks Finn for the update, I have been wondering how your little champ was travelling. Love and prayers to you, Lee and Liam also as you share this journey. May Kaden continue to improve in leaps and bounds, the photos are lovely. xxxxxxxxxxxxxxx the hug lady

  2. Can only imagine how exhausting this is for you and the family…but you have such a fighter on your hands. I hope Kaden has a great weekend when the Hawks win the Grand Final!!!

  3. Thank you for writing such a fantastic blog to keep us all up dated on Kaden’s progress . It’s good to hear that Kaden has improved and hope he continues to do so in leaps and bounds from here on in. Have almost finished a Hawks quilt for Liam also.
    Hopefully your favorite Hawks triumph again this weekend….. GO HAWKS!!!!

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.