Trip to Sydney

Last week we received a call advising that Kaden’s lungs were clear from the infection previously detected on a CT. They officially gave us the go ahead to fly to Sydney on Sunday. The week has been busy confirming flights, accommodation, medications, feeding bags etc. We will be staying at a self contained apartment across the road from the hospital which we are pleased with, as it will give us some family time together away from the hospital when kaden is well enough to come out.

We have been advised by the liver nurse in Sydney, that they will be conducting tests on Kaden next week, in preparation for a liver transplant. The transplant has still not been confirmed,  however they like to get everything organised just in case this is the path they will take.

Kaden will also be undergoing surgery on his lung on Wednesday,¬†to remove a small dot that has not yet disappeared with chemo. We’re hoping¬† that this dot will be removed via key hole surgery, so that his recovery is quicker. In preparation for Kaden’s surgery’s, we have been busy¬†helping him to gain weight. He’s been doing a great job on his feeds through the NG tube and also showing interest in eating, this has made Lee and I very happy.

Kaden has had a good time at home. With each day he has been up and about more, as I’m writing this, he is singing which is fantastic, as this indicates that he’s feeling better. He’s enjoyed playing the xbox and watching any cartoon tv series he can get his hands on as well as spending some quality time with his little brother Liam.

Brotherly fun!
Brotherly fun!

012b5f6ca490ae7049d49db3af16c21f2f4fa7a1c1

Check out that cheeky smile ;)
Check out that cheeky smile ūüėČ

Round 7

Kaden recently completed round 7 of his chemo. Like previous chemo’s, this round stripped his immune system and he was readmitted back into PMH for 5 days due to a temperature spike.

Since returning home, Kaden has spent a lot of time relaxing and watching movies and TV shows on his Ipad. He has since discovered he has a love of the Pokémon cartoon. He liked Pokémon so much, he requested a trip to the shops to purchase some Pokémon figurines that he now has displayed in his room.

We would like to thank everyone for the ongoing support and gifts that we have received, we are all so very grateful. We have even had some friends shave their much loved hair!

One of the people that shaved his locks is Matt. He arranged to have a fancy dress day and also allowed his mates to colour and shave his hair into all sorts of funny shapes. The day was a huge success with lots of laughs. Thank you Matt for surrendering your locks for Kaden!

A big thank you to Kara and Jordan for also shaving their heads. With funds raised they purchased puzzles, Lego, dinosaur toys and board games, the boys have had a great time playing with the toys and have created some funny looking dinosaurs.

We would also like to thank everyone for the special gifts that have travelled all the way from Melbourne, the smile that it puts on Kaden and Liam’s faces warms our hearts.

This year, Kaden’s teacher Jen, took part in the Perth and HBF Marathons. This is a very long and tiring race that she had been training for quite some time. On completing this race, Jen received two medals, thinking of Kaden and Liam during this race, she decided that upon completion she would give the boys her medals. Kaden, Liam and family would like thank you for this very kind gesture as we understand the strength and determination it takes to complete such a long race.

Kaden has been booked in for a CT next week, from this, the doctors will advise if he is ready to travel to Sydney for surgery. The doctors have not yet confirmed If Kaden will be having a re-section or a liver transplant.