A bump in the road

Kaden has still be feeling pretty miserable the last few days and has been struggling to get any rest at night time. His foot has continued to give him quite a bit of pain which has been limiting his ability to get around. On a better note the cream prescribed by the dermatology team has been doing its job and helping to clear up the rash and the itchy symptoms.

We have been advised that Kaden will be having a biopsy tomorrow, as this will help give the doctors a clear indication on why Kaden’s numbers are taking so long to get down to the levels that the doctors would be happy with. The nurses and doctors┬áhave reassured us that this procedure is quite common after the type of┬ásurgery┬áKaden has had and should only take around an hour. We are hoping that if Kaden’s numbers continue to improve, that they will discharge him over the weekend so that he can come and stay with us┬áat the apartment. ­čÖé

Liam was awarded a special prize at school this week which he proudly showed us at pickup. Although he is missing his friends and school back in Perth, he has settled quite well into the school at the hospital and is having a great time socialising with the other kids.

While we have been on this journey, we have met so many amazing and strong parents along the way. One mum who I have met while we have been in the hospital was so lovely and took the time to sit and comfort me while I was having an emotional moment. She also introduced me to the wonderful adults colouring books, which have been a great distraction, giving Lee, Kaden and myself a way to zone out and be creative.

More hair growing today
More hair growing today
Kadens eyelashes starting to grow
Kadens eyelashes starting to grow
Fold out bed the we sleep on in the hospital
Fold out bed the we sleep on in the hospital
Adult colouring book
Adult colouring book
Liam playing shop in the class room
Liam playing shop in the class room
The boys playing the xbox
The boys playing the xbox

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